SLU Strikes out ALS
Sunday, April 30, 2017
Join Daniele Coxe and friends at St. Lawrence University as they host a run for ALS Research on campus. There will be a $20 registration donation which includes a T-shirt.
ALS (amyotrophic lateral sclerosis), also known as Lou Gehrig's disease, is an aggressive neurodegenerative disease that causes muscle weakness, paralysis, and ultimately respiratory failure. There is currently no cure for ALS. The ice bucket challenge of 2014 made huge strides for raising awareness and funds for the ALS association. There is still an incredible gap between research, effective treatment to slow the progression of a disease and ultimately a cure. The Robert Packard Center is a research center for ALS where over 100 scientists from Hopkins, other universities, government labs and biotech companies work together to share insights and materials to understand the biology of ALS and find a cure.
I have organized a 5k at St. Lawrence University to reside money to go toward the Robert Packard Center and their progress to find a cure. I have a deep personal connection to the disease as my father received its fatal diagnosis in 2006 and passed away in 2008. The speed at which the disease progresses is striking and the helplessness my family felt upon the diagnoses is something I'm passionate about for preventing for others. It’s an unfair disease and the success of this fundraiser means a lot to me. Please donate-it’s about time we #strikeoutALS.