The Hope is in the Science

Welcome to My Personal Page

I lost the love of my life and best friend to ALS on July 22, 2013. He never got to meet two of his grandsons. We never got to enjoy a retirement filled with travel, time with family and friends, and spoiling our grandchildren.  I miss him in my life every day. I remember reading Tuesdays With Morrie over 10 years ago and was arrogant to believe this rare disease would never strike my family. It did and has changed our lives forever. My husband, Mike Pohorylo, loved life, his family, and the hundreds of friends who supported him during the last year of his life. He battled ALS courageously with a smile on his face every single day. He would just say “It is What it Is”.

We need to end this disease or at least find a cause. No one should have to endure the physical, emotional, and financial devastation that you experience when you are diagnosed with ALS. Please consider supporting me and and the Sulewski family to help fund important research being done by the Robert Packard Center for ALS Research at Johns Hopkins, the only international research organization dedicated solely to the disease. THANK YOU ALL.